Moss Family: Memories

Wednesday, September 21, 2011

Memories

One memory I cherish with Kian is sitting outside our house together. He loved being outside and I loved spending time with him. Just me and my baby. Thinking about and missing our little fighter so much. Daddy and Mommy love you Kian!

4 comments:

HeatherSeptember 25, 2011 at 11:30 AM
Such a sweet picture, and what a little ham sticking his tounge out!
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AnonymousSeptember 26, 2011 at 7:14 AM
Always a cutie-pie!!! What a smile and those eyes!!!!!Missing you, sweepea!Grandma Maria
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aunt bootSeptember 26, 2011 at 11:45 PM
You both look so happy...he loved spending time with you, too! Thanks for sharing this memory. Love you all.
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AnonymousSeptember 29, 2011 at 4:57 PM
Love this beautiful picture of mommy and Kian...
Thank you for sharing. I think of you all so very much!
Sheila
xo
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Kian's Story

Kian was born on January 13, 2010 in Miami, Florida. In utero he was diagnosed with HLHS (Hypo Plastic Left Heart Syndrome). At one week old, after a heart catheterization, we found out that he was born without Pulmonary Arteries. His body had compensated and formed collateral arteries to supply his lungs with blood. We were told they had never seen someone born with his combination of defects and later learned just how rare (special) he is! His actual diagnosis is single ventricle, absent PA’s, MAPCA’s, unbalanced AV canal, DORV, heterotaxy, and asplenia. A bunch of letters and words that mean Kian is one of few in the country.

Kian spent his first 4 ½ months in the CVICU at Miami Children’s Hospital. He endured two GI surgeries, two heart catheterizations, several infections, hundreds of xrays/IV’s, two wound vacs, multiple intubations and other respiratory assistance. He has a g-tube and eats through that. After all that, he came out on top and went home on June 4, 2010! He is such an amazing fighter!

On December 1, 2010 Kian had his firt open heart surgery called Unifocalization. This surgery was done in Palo Alto, California. Kian did amazing through the surgery but had many complications after.

Kian earned his angel wings on February 8, 2011. He is and will always be our amazing little fighter. We find comfort in knowing that Kian is in God's arms, healed and happy. We will see him again one day!

We love you Kian!

Moss Family

Kaia

Koen

Wednesday, September 21, 2011

Memories

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