Moss Family: Pictures

Tuesday, February 23, 2010

Pictures

Here are some pictures of our handsome little fighter!

5 comments:

AnonymousFebruary 25, 2010 at 5:34 AM
What a cutie pie!!!!!...Mia loves your new "JORDANS"!!!!...Can't wait to see you again, sweetpea!!!
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aunt bootFebruary 26, 2010 at 9:20 AM
there's my little man! baby schmitz sends hugs and kisses from your best friend or girlfriend. ;)
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AnonymousFebruary 26, 2010 at 11:02 PM
your son is beautiful. continue to stay strong. my family has you all in our constant prayers. we added your family to the church prayer list, so you have God hearing all their prayers too.
-tim & christine mugavero
-amy & joey smirnov
-the entire chambers family
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AnonymousFebruary 27, 2010 at 8:12 AM
Danielle and Zach he is so precious...Please know you all are in our prayers...stay strong...
Love,
Katie
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AnonymousMarch 3, 2010 at 2:27 PM
He's adorable D:) I think about you guys all the time,always checking on the progress, and always sending prayers your way...
Love, Tanya Vuko
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Kian's Story

Kian was born on January 13, 2010 in Miami, Florida. In utero he was diagnosed with HLHS (Hypo Plastic Left Heart Syndrome). At one week old, after a heart catheterization, we found out that he was born without Pulmonary Arteries. His body had compensated and formed collateral arteries to supply his lungs with blood. We were told they had never seen someone born with his combination of defects and later learned just how rare (special) he is! His actual diagnosis is single ventricle, absent PA’s, MAPCA’s, unbalanced AV canal, DORV, heterotaxy, and asplenia. A bunch of letters and words that mean Kian is one of few in the country.

Kian spent his first 4 ½ months in the CVICU at Miami Children’s Hospital. He endured two GI surgeries, two heart catheterizations, several infections, hundreds of xrays/IV’s, two wound vacs, multiple intubations and other respiratory assistance. He has a g-tube and eats through that. After all that, he came out on top and went home on June 4, 2010! He is such an amazing fighter!

On December 1, 2010 Kian had his firt open heart surgery called Unifocalization. This surgery was done in Palo Alto, California. Kian did amazing through the surgery but had many complications after.

Kian earned his angel wings on February 8, 2011. He is and will always be our amazing little fighter. We find comfort in knowing that Kian is in God's arms, healed and happy. We will see him again one day!

We love you Kian!

Moss Family

Kaia

Koen

Tuesday, February 23, 2010

Pictures

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