Moss Family: Quick update

Saturday, August 28, 2010

Quick update

Just a quick update...We're HOME!!! Kian's heavy breathing was due to either feeding or a cold, but nothing major! So we are all back home as a family where we belong. Thank you so much for your thoughts and prayers. I will post pictures and more info soon!

3 comments:

AnonymousAugust 29, 2010 at 9:33 AM
WONDERFUL!!!!!.....LOVE YOU!!! NANNA CHICHI
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AnonymousAugust 29, 2010 at 11:14 AM
Awesome news! So happy to hear you are back home.
love and prayers,
The Snyders
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aunt bootAugust 30, 2010 at 11:53 PM
so glad to hear! thanks for the update - can't wait to see more pics of that handsome boy! :)
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Kian's Story

Kian was born on January 13, 2010 in Miami, Florida. In utero he was diagnosed with HLHS (Hypo Plastic Left Heart Syndrome). At one week old, after a heart catheterization, we found out that he was born without Pulmonary Arteries. His body had compensated and formed collateral arteries to supply his lungs with blood. We were told they had never seen someone born with his combination of defects and later learned just how rare (special) he is! His actual diagnosis is single ventricle, absent PA’s, MAPCA’s, unbalanced AV canal, DORV, heterotaxy, and asplenia. A bunch of letters and words that mean Kian is one of few in the country.

Kian spent his first 4 ½ months in the CVICU at Miami Children’s Hospital. He endured two GI surgeries, two heart catheterizations, several infections, hundreds of xrays/IV’s, two wound vacs, multiple intubations and other respiratory assistance. He has a g-tube and eats through that. After all that, he came out on top and went home on June 4, 2010! He is such an amazing fighter!

On December 1, 2010 Kian had his firt open heart surgery called Unifocalization. This surgery was done in Palo Alto, California. Kian did amazing through the surgery but had many complications after.

Kian earned his angel wings on February 8, 2011. He is and will always be our amazing little fighter. We find comfort in knowing that Kian is in God's arms, healed and happy. We will see him again one day!

We love you Kian!

Moss Family

Kaia

Koen

Saturday, August 28, 2010

Quick update

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