Moss Family: Update

Tuesday, July 13, 2010

Update

Sorry you weren't able to view the videos of Kian! I just changed them from private so try again and let me know!! :)

Our trip to Miami went well. Kian is having some GI issues so we are trying a new formula now and a new medication. Pray that it works! Thank you!

I'll post some new pictures soon!

2 comments:

Joe and SueJuly 14, 2010 at 3:18 PM
Too, too cute!!! He's even more adorable in the videos, thanks for sharing!!!
Joe & Sue
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AnonymousJuly 23, 2010 at 6:49 PM
Kian looks like you here!!!
Love Katie
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Kian's Story

Kian was born on January 13, 2010 in Miami, Florida. In utero he was diagnosed with HLHS (Hypo Plastic Left Heart Syndrome). At one week old, after a heart catheterization, we found out that he was born without Pulmonary Arteries. His body had compensated and formed collateral arteries to supply his lungs with blood. We were told they had never seen someone born with his combination of defects and later learned just how rare (special) he is! His actual diagnosis is single ventricle, absent PA’s, MAPCA’s, unbalanced AV canal, DORV, heterotaxy, and asplenia. A bunch of letters and words that mean Kian is one of few in the country.

Kian spent his first 4 ½ months in the CVICU at Miami Children’s Hospital. He endured two GI surgeries, two heart catheterizations, several infections, hundreds of xrays/IV’s, two wound vacs, multiple intubations and other respiratory assistance. He has a g-tube and eats through that. After all that, he came out on top and went home on June 4, 2010! He is such an amazing fighter!

On December 1, 2010 Kian had his firt open heart surgery called Unifocalization. This surgery was done in Palo Alto, California. Kian did amazing through the surgery but had many complications after.

Kian earned his angel wings on February 8, 2011. He is and will always be our amazing little fighter. We find comfort in knowing that Kian is in God's arms, healed and happy. We will see him again one day!

We love you Kian!

Moss Family

Kaia

Koen

Tuesday, July 13, 2010

Update

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