Moss Family: Update & Pictures

Saturday, April 10, 2010

Update & Pictures

Kian is doing well. He has had 3 pretty good days in a row! He is smiling more and even laughing at us a little bit! We are just so in love with this little boy and thank God for him every day.

3 comments:

AnonymousApril 10, 2010 at 3:17 PM
Thank you for the pictures. It is so good to see him and can't wait to meet this amazing little man. You two are incredible.
love,
Sheila
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AnonymousApril 10, 2010 at 4:38 PM
That is such great news... he does look bigger...he is such a precious little man.....I can't wait to meet him!!!!
Love,
Katie
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AnonymousApril 11, 2010 at 9:42 PM
Ryan and I are thinking of you guys and praying hard for sweet Kian. He is beautiful! We are following the blog. Thank you for the updates!!

Ryan and Samantha Senkarik
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Kian's Story

Kian was born on January 13, 2010 in Miami, Florida. In utero he was diagnosed with HLHS (Hypo Plastic Left Heart Syndrome). At one week old, after a heart catheterization, we found out that he was born without Pulmonary Arteries. His body had compensated and formed collateral arteries to supply his lungs with blood. We were told they had never seen someone born with his combination of defects and later learned just how rare (special) he is! His actual diagnosis is single ventricle, absent PA’s, MAPCA’s, unbalanced AV canal, DORV, heterotaxy, and asplenia. A bunch of letters and words that mean Kian is one of few in the country.

Kian spent his first 4 ½ months in the CVICU at Miami Children’s Hospital. He endured two GI surgeries, two heart catheterizations, several infections, hundreds of xrays/IV’s, two wound vacs, multiple intubations and other respiratory assistance. He has a g-tube and eats through that. After all that, he came out on top and went home on June 4, 2010! He is such an amazing fighter!

On December 1, 2010 Kian had his firt open heart surgery called Unifocalization. This surgery was done in Palo Alto, California. Kian did amazing through the surgery but had many complications after.

Kian earned his angel wings on February 8, 2011. He is and will always be our amazing little fighter. We find comfort in knowing that Kian is in God's arms, healed and happy. We will see him again one day!

We love you Kian!

Moss Family

Kaia

Koen

Saturday, April 10, 2010

Update & Pictures

3 comments:

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