Moss Family: Surgery

Thursday, February 11, 2010

Surgery

Kian is out of surgery. He now has his feeding tube in. The surgeon said that the surgery was a little more difficult than normal because his intestines are mal-rotated, but God guided their hands and everything was successful! We haven't seen him yet, but are happy to know he is out of surgery and can't wait to be with him! Thank you for your thoughts and prayers!

2 comments:

Jenny TaylorFebruary 13, 2010 at 8:34 AM
I love you guys! I was going to come today, but my mom said you are having a family day. Enjoy your day! I will try to come see you soon. xoxoxo Your in our daily thought and prayers.
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AnonymousFebruary 13, 2010 at 8:00 PM
Thank you for your continued posts and updates. Obviously, he is a fighter and as tough as his mama! :)

You all remain in our thoughts and prayers.

Hugs,

Chandra & Jeff
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Kian's Story

Kian was born on January 13, 2010 in Miami, Florida. In utero he was diagnosed with HLHS (Hypo Plastic Left Heart Syndrome). At one week old, after a heart catheterization, we found out that he was born without Pulmonary Arteries. His body had compensated and formed collateral arteries to supply his lungs with blood. We were told they had never seen someone born with his combination of defects and later learned just how rare (special) he is! His actual diagnosis is single ventricle, absent PA’s, MAPCA’s, unbalanced AV canal, DORV, heterotaxy, and asplenia. A bunch of letters and words that mean Kian is one of few in the country.

Kian spent his first 4 ½ months in the CVICU at Miami Children’s Hospital. He endured two GI surgeries, two heart catheterizations, several infections, hundreds of xrays/IV’s, two wound vacs, multiple intubations and other respiratory assistance. He has a g-tube and eats through that. After all that, he came out on top and went home on June 4, 2010! He is such an amazing fighter!

On December 1, 2010 Kian had his firt open heart surgery called Unifocalization. This surgery was done in Palo Alto, California. Kian did amazing through the surgery but had many complications after.

Kian earned his angel wings on February 8, 2011. He is and will always be our amazing little fighter. We find comfort in knowing that Kian is in God's arms, healed and happy. We will see him again one day!

We love you Kian!

Moss Family

Kaia

Koen

Thursday, February 11, 2010

Surgery

2 comments:

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